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From Stroke Survivor to Scholar

August 12, 2021/in News, Nicole Dudenhoefer

The following article was written for UCF Today News and is shared with permission. Johnson Scholarship Foundation works in partnership with the Student Accessibility Services office at UCF and all the schools in the State University System of Florida to provide scholarships to students with disabilities.

In her final semester at UCF, Alex Dixon was finally able to complete a task that most college students take for granted: reading a textbook on her own. For the graduating early childhood development and education major, walking across the stage for commencement with her peers this summer seemed like it would take a miracle a decade ago, instead of her consistent hard work.

When Dixon was 10 she caught pneumonia, which triggered a rare malfunction that caused her brain to start attacking her body. She recovered from the infection, but continued to battle pain, muscle spasms, contortions and loss of function for two years as she visited specialists around the country who could not figure out what was wrong. By the time she entered sixth grade she started to use a wheelchair. At 12, she underwent a deep brain stimulation procedure as a last hope to find a solution, but while she was anesthetized she had a stroke.

“It was incredibly frightening,” says Juli, Dixon’s mother and a professor of mathematics education at UCF since 2000. “The stroke damaged the part of her brain that was killing her, but there was quite a bit of collateral damage as well. As she was coming out of her coma, we were told she might be in a vegetative state. It’s been very slow progress over time, but she returned.”

That collateral damage includes being partially paralyzed on her right side and legally blind — able to see only half of anything straight on. Before Dixon became ill, she was a happy, healthy child who took gifted classes, played piano, loved art and wanted to be a veterinarian when she grew up. After her stroke, she had to relearn every aspect of her life, from normal bodily functions and academics to who she even was. It was in that relearning process that Dixon found an interest in teaching.

“I want to work in a preschool setting with students with and without disabilities and special needs, hopefully in an inclusive setting,” Dixon says. “The first few years of life are so valuable to build a base of the education and play so kids are excited about learning and develop the positive mindset toward it that will help them persevere later on.”

With the support of her family and her own determination to improve, she slowly regained functions such as walking, talking, and completing schoolwork. Throughout middle school and high school she had an aide help her get to and from classes and help her complete her assignments. When Dixon came to UCF in 2016, she no longer needed an aide, but throughout her time here she’s used Student Accessibility Services for support.

“They helped me be as independent as possible,” Dixon says. “I still had trouble reading in the beginning and even now sometimes, so they gave me different technology, like reading software on my computer. They helped me get a notetaker and smart pen to capture what my professors were saying, a reader for tests and extra time if I needed it. It gave me the opportunity to show what I knew because I had the resources.”

Read the rest of Alex Dixon’s story at UCF Today.

Nicole Dudenhoefer is a content producer for UCF Marketing and a 2017 journalism graduate of UCF.

A Recipe for Success, Part 2

October 13, 2017/in Bea Awoniyi, King Jordan, Malcolm Macleod, News, Tori Lackey

In honor of National Disabilities Employment Awareness Month, we bring you the second in a two-part series on the Johnson Scholarship Program. Now in its 26^th year, the program provides scholarships for students with disabilities and a network of support services to enhance student success.

Research shows that there is a great gap between educational expectations and reality for students with disabilities.

A 2006 National Longitudinal Transition Study commissioned by the U.S. Department of Education’s Office of Special Education Programs and Institute of Education Sciences showed that 85 percent of youth with disabilities plan to complete some form of post-secondary education (26 percent expected to complete a post-secondary vocational, technical or trade school; 34 percent expected to graduate from a two-year college; 25 percent expected to graduate from a four-year college). However, the same study also indicates that only one in 10 of these students actually complete any sort of post-secondary education (5 percent graduated from a post-secondary vocational, technical or trade school; 4 percent graduated from a two-year college; 1 percent graduated from a four-year college).

The Johnson Scholarship Program helps to narrow the gap between expectation and attainment. Data kept by Florida Atlantic University finds that 66.1 percent of the students receiving at least one scholarship disbursement have graduated and another 20 percent are still enrolled in post-secondary education. The role of the Disability Support Services (DSS) office in helping students through this process cannot be overstated.

The good work of the DSS in delivering the scholarship program to students is enabled by its partnership with the Johnson Scholarship Foundation and the Florida Board of Governors’ office. The scholarship program depends upon a unique collaboration among the philanthropic, higher education and legislative sectors.

The Board of Governors Office performs essential leadership functions. It serves as a liaison between the Foundation and the universities, disseminates information on best practices, and helps to standardize processes. It manages and distributes the scholarship money to the various SUSF schools and it also provides expertise on legislative and policy changes that might affect students with disabilities.

The Board of Governors scales the support of students with disabilities to a state level, providing a greater platform for advocacy and building allies across sector lines in Florida. Such allies are invaluable as students with disabilities graduate from college and pursue employment.

At the heart of the partnership among JSF, the Board of Governor’s Office and the campus DSS is a one-day annual meeting, convened by JSF. The purpose of this meeting is to review the performance of the scholarship program, discuss developments affecting students with disabilities and best practices and opportunities for learning and collaboration. Professionals from outside the SUSF are sometimes invited to attend the annual meeting and speak on issues relevant to students with disabilities and their educators.

The underlying reason for JSF’s mission in education is to facilitate meaningful employment. Unfortunately, there is huge underemployment of people with disabilities, even those with university degrees. According to the Current Population Survey (CPS) data released in June 2017, the unemployment rates for people with disabilities is more than double the rate for people without disabilities. The under employment of students with disabilities has been a recurring topic of discussion at JSF Scholarship annual meetings.

The Johnson Scholarship Program for students with disabilities is based upon a unique working relationship among JSF, the State of Florida, the SUSF and the university campuses, particularly the DSS at each campus. It is this partnership that has made the scholarship program successful. We have repeatedly noted that the real value of the program is in the work of the people involved (rather than the money).

The program builds on infrastructure, expertise and resources that are already in place in the state of Florida. The Board of Governors is the governing body for its 12 state universities and DSS are well established at each campus. The delivery of the Scholarship Program causes additional work for these partners but the incremental cost is small compared to the benefits.

The JSF SUSF Scholarship Program is a proven winner that is easily replicable in other states. The administrative machinery, DSS and a philanthropic sector are already in place. All that is required is an individual or group of individuals to champion the program.

For more information about Johnson Scholarship Foundation, visit www.jsf.bz.

A Recipe for Success

October 6, 2017/in Bea Awoniyi, King Jordan, Malcolm Macleod, News, Tori Lackey

In honor of National Disabilities Employment Awareness Month, we bring you the first in a two-part series on the Johnson Scholarship Program. Now in its 26^th year, the program provides scholarships for students with disabilities and a network of support services to enhance student success.

What if scholarships weren’t really about the money?

As a private philanthropic foundation, the Johnson Scholarship Foundation invests to obtain the highest possible rate of return. The return on its scholarship grants is defined by the rate of successful matriculation and completion of post-secondary education.

JSF has learned that scholarships that include wraparound support are more likely to help a student to succeed. Money provides the financial stability and opportunity for post-secondary education, but it is not what gets a student through. Non-monetary supports attached to a scholarship contribute more to post-secondary success than money. This is especially true for students with disabilities.

JSF’s scholarship for people with disabilities attending a school within the State University System of Florida (SUSF) delivers both scholarship and non-monetary support by way of a collaboration of JSF, the SUSF and the Florida Legislature. Scholarships are awarded to students with disabilities who enroll at any one of the 12 SUSF campuses.

The program was founded in 1991. It began with an agreement between JSF’s founder, Theodore Johnson, and the State of Florida, which was expressed by an Act of the Legislature entitled “…The Johnson Scholarship Program.” This Act provides for a scholarship program for students with disabilities to be funded by JSF. It also provides for a 50 percent state match for JSF grants and charges the Department of Education to administer the program.

Over the past 26 years JSF has made grants exceeding $9 million, which have all gone to student scholarships, together with the state match. However, the State’s commitment to administer the scholarship program has proven even more valuable than its matching funding.

The Florida Board of Governor’s office and each campus of the State University System form the backbone of a comprehensive student support system, which accompanies the scholarship. This is the secret sauce that makes the scholarship work. The award of the scholarship may capture a student’s attention, but the real magic of the scholarship lies in the mentoring and assistance that goes with it.

This is not to downplay the importance of money. Without it, JSF has no mission and there are no scholarships. Money is assuredly the main course. But it is the secret sauce that enables students to sit down and stay for dinner. And it is the secret sauce that students remember long afterward. Scholarships plus Supports equals Achievement ($ + S = A).

Secret sauce can be defined as the personal, non-monetary support, wrapped around the scholarship. The Disability Support Services (DSS) at each campus plays a critical role. It advertises the scholarship, receives the applications, leads the selection process, makes the award and provides ongoing support to scholarship recipients. JSF believes that the DSS’ ownership and control of this scholarship process and the support that they provide to each student throughout their college careers is central to the increased persistence and graduation rates of students with disabilities on each campus.

The scholarship program provides reciprocal benefits to the DSS offices, one of which is enhanced awareness of disability issues in other areas of the university. Ten of the 12 DSSs surveyed indicated that they use a selection committee to determine scholarship recipients. The selection committees are comprised of faculty and professionals drawn from various university departments. This increases knowledge of the special aspects and requirements of students with disabilities, thus producing allies for these students across campus. Another enhancement of the DSS profile within the university stems from a supplementary matching grant for scholarships that JSF offers to each SUSF campus. The local DSS office typically takes a leadership role in negotiating the grant and advocating for the matching funds within the university and the development office.

The most important reciprocal benefit that the scholarship provides is the enhanced opportunities for students to connect with the DSS staff and services. Eight out of 12 DSS offices report an increase in the use of services because the scholarship has heightened awareness of the office and the services it has to offer.

The enhanced relationship between the DSS and scholarship recipient gives the DSS access to the recipient’s academic progress. Some schools take advantage of this to determine when they need to offer appropriate guidance, support or to consider or reconsider accommodations. Even the act of applying for the scholarship can help students form social and support networks.

The benefits of mentoring and support for post-secondary students, particularly those at risk, seem self-evident. Anecdotal evidence abounds. However, there is not much reported research. In Mentoring Individuals with Disabilities in Postsecondary Education: A Review of the Literature, Brown, Takahashi, and Roberts find distinct themes in the research that was available:

Within these 10 articles, however, several themes did emerge, including: a) the positive role of technology; b) the desire to use current mentees to become future mentors; c) a focus on specific disability groups, such as learning disabilities, psychiatric disabilities, and disabilities perceived as mild; d) the usefulness of mentoring for academic, career, and social skills; and e) the value of establishing long-term mentoring relationships.

The DSS at each SUSF campus responds to most of the themes identified by the authors. These offices typically provide adaptive technology, expertise and focus on specific disability groups, academic and social mentoring and long-term relationships. The JSF Scholarship Program also strengthens long-term relationships between the DSS and scholarship recipients. In addition to the annual application and award process, local DSS offices organize recognition events attended by students, parents and faculty. Many times, JSF representatives are in attendance as well.

Next week: Bridging the gap between educational expectations and reality for students with disabilities.